STUDY UPDATE

See research studies underway and learn how you can participate.

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STUDY UPDATE

Postby mfejzo » Sep 16, 2011 11:26 am

Hello Study Participants!

We currently have completed and published 11 studies based on your survey results! Two of our most recent studies providing evidence for a genetic predisposition to HG, and showing HG can lead to long-term effects in children, have received worldwide media attention. This will help greatly to increase public awareness, make doctors take HG more seriously, as well as inspire more HG research. I have pasted links to summaries of our studies below. Thanks to you, we have made great progress but we still have a long way to go.

We currently have:

•1981 Eligible Participants (1317 HG, 664 Friend Controls)
•1600 Enrolled (had phone appointment and sent in signed consent forms)
•1084 DNAs (764 HG, 320 Friend Controls)
•892 complete the entire survey
•1239 survey sections one and two completed

We can NOT find the cause of HG until we have a minimum of 2,000 DNAs (1,000 HG and 1,000 friend controls)

PLEASE help us by checking the list below to make sure you have completed ALL the necessary steps and please refer your friends (HG and non-HG) to participate (as you can see we are very behind on the non-HG friends).

1) If you haven’t completed your SURVEY, please do so at http://www.helpher.org/HER-Research/2007-Genetics/

2) If you had HG, please have your FRIEND CONTROL email me at nvpstudy@usc.edu if you haven’t already. If possible, please refer extra friends.

3) If you haven’t sent in your CONSENT FORM, please do so as soon as possible.

4) If you haven’t sent in your SALIVA KIT, please do so as soon as possible.

5) If you had HG and haven’t sent your MEDICAL RECORDS relating to iv treatment, please do so as soon as possible.

6) If you have any problems/questions with the survey or anything else, please email me at nvpstudy@usc.edu

7) Please spread the word to your OBs and friends so we can get our 2,000 participants as fast as possible.

We have also begun a new study to determine medication effectiveness. If you are trying to conceive or newly pregnant and have had HG in a past pregnancy, please consider participating in this study by filling out this short survey as close to your first positive pregnancy test as possible and thereafter to let us know how medications effect your intake and nausea:

http://www.helpher.org/mothers/current- ... 11-survey/



Thank you all very much for your time-each one of you is making a difference for generations of women and their children!


PUBLICATIONS LIST:

Risk factors, treatments, and outcomes associated with prolonged hyperemesis gravidarum.
http://informahealthcare.com/eprint/UM2 ... UEC8d/full

Prenatal exposure to hyperemesis gravidarum linked to increased risk of psychological and behavioral disorders in adulthood.
http://journals.cambridge.org/action/di ... id=8351138

Posttraumatic stress symptoms following pregnancy complicated by hyperemesis gravidarum.
http://www.ncbi.nlm.nih.gov/pubmed/21635201

Recurrence risk of hyperemesis gravidarum.
http://www.ncbi.nlm.nih.gov/pubmed/21429077

Familial aggregation of hyperemesis gravidarum.
http://www.ncbi.nlm.nih.gov/pubmed/20974461

Symptoms and pregnancy outcomes associated with extreme weight loss among women with hyperemesis gravidarum.
http://www.ncbi.nlm.nih.gov/pubmed/20044860

Patients with a history of hyperemesis gravidarum have similar symptoms during egg stimulation and develop ovarian hyperstimulation syndrome: case series.
http://www.ncbi.nlm.nih.gov/pubmed/19878938

High prevalence of severe nausea and vomiting of pregnancy and hyperemesis gravidarum among relatives of affected individuals.
http://www.ncbi.nlm.nih.gov/pubmed/18752885

Secular trends in the treatment of hyperemesis gravidarum.
http://www.ncbi.nlm.nih.gov/pubmed/18260047

Elective pregnancy termination in a large cohort of women with hyperemesis gravidarum.
http://www.ncbi.nlm.nih.gov/pubmed/18061703

The psychosocial burden of hyperemesis gravidarum.
http://www.ncbi.nlm.nih.gov/pubmed/18059463
mfejzo
Been There Done That
 
Posts: 107
Joined: Sep 20, 2005 12:22 am

Want to participate in study

Postby Arias » Oct 11, 2011 1:44 pm

Hi,
I am from Canada and would like to help. Can I participate in the study?
Arias
New Member
 
Posts: 45
Joined: Aug 27, 2010 12:48 am

Postby mfejzo » Oct 11, 2011 2:26 pm

Unfortunately we are not covered for the cost of participants outside the US. There are no costs for participants in the US.
Thank you for your interest,
Marlena
mfejzo
Been There Done That
 
Posts: 107
Joined: Sep 20, 2005 12:22 am


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