Hi all,
We reached 1,000 eligible participants this week! That is a huge milestone. Not everyone has completed all steps so we still need new participants. Email me at nvpstudy@usc.edu to participate or for any questions.
1) If you haven't gone over the forms with me by phone for 5 minutes, please email me to set up an appointment.
2) If you haven't sent/faxed/scan-emailed in your consent form, please do so.
3) If you haven't sent in your medical record of iv treatment, please do so.
4) If you haven't filled out the long online survey, please do so.
5) If you haven't mailed in your saliva kit, please do so.
6) If you haven't referred your friend control, please do so...in fact we are very behind on friend controls-only 371, so if you have extra friend controls HG, please have them email me at nvpstudy@usc.edu.
Thank you for helping me find the biological cause/cure for HG so the next generation won't have to suffer like we did! We are getting closer...
Marlena, 2X HG survivor/HG scientist/mommy